Three months

Abigail is three months today, smiling and giggling.  She is 10.8 pounds and 23 inches long.  She is currently on a pulse ox machine during the day. If she stays between 93-100 for oxygen and below 180 for heart rate she is off oxygen during the day.  She is on day three of no oxygen during the day. She gets put back on at night.  Today's doctors appointment her medication amount triple to control the acid reflux.  Her anus is still not growing on its own yet so we have to continue to stretch it at least two times a day. 

Otherwise she is almost has 70% of her head control.  Sleeps for 7 hours straight in the evening. She is on track with her due date so  almost a two month old which is good.  

Week by Week

Pulmonology appointment

Yesterday I drove back up to Denver children's hospital.  Abigail was going there about her oxygen.  Her heart doctor wants her off oxygen asap to help her heart heal, primary doctor does not until acid reflex is done.  So we got referred to another specialist. The doctor was really nice.  She explained that the heart and acid reflex are not helping her lungs.  Yes the acid reflex needs to go away before oxygen come off.  She chokes and throws up to much which is a risk for aspirating.   

New plan per the new doctor, waiting federal for a home pulse ox machine.  During the day she will be hooked up and  off oxygen unless numbers are to low or heart rate too high.  At nights she will be on oxygen no matter what.  We are looking at 1-2 months hopefully and then off completely.   

She is taking two naps in the am. Normally a rest for an hour while I run.  When we get home she will sleep for an hour.  Wake eat and sleep for two.  We are slowly making progress.  

Baptism

Abigail was baptize today. Thank you Jackie and Jason for being her godparents and celebrating this wonderful blessing with us. 

Pastor introducing Abigail to the church, and Abigail is wearing her home made dress that mum made.  It turned out amazing.  

It was a beautiful morning for a wonderful celebration.   

Friday family day

Today we went to the county fair because Jon got free tickets.  Heaven was babysitting Wyatt so he got to jion us too. They pet some animals,

Heaven hot to play in a ball like a hamster,

And we watched a sea lion show and got a picture.  Can you find a part of Abigail?  

Church

Today at church the neeerst member was being held by the oldest member in the church.  It was beautiful 

After church we went to my friend Terri's house to take pictures of the girls. Abigail is on the left at roughly 8 pounds and Violet is on the right roughly 5.10 pounds.  Violet in this picture is the same size Abigail was at born. It show how much she has grow in two months.  

Doctor updates

Last Thursday Abigail went to a gastro doctor specialist out of Denver.  The doctor let me go back to a normal diet except caffeine, chocolate, and peppermint.   She also found that Abigail's rectum is too small. That would explain the lack of poop in two week.  So we have to stretch those muscles out twice a day with a plastic probe.  Kind of gross but after it is done our baby girls poops and is not as fussy.  She still has acid reflex and had X-ray on her upper gi.  That came back all good.  We go back to the gi doctor in three weeks for follow up.  

Everyone likes pictures

Today we went to the cardiologist, another specialty doctor out of children's hospital in Denver. Same doctor that read her ego in the nicu.  Abigail's heart murmur is gone but the hole in her heart is still 4-5 mm.   Doctor wants to follow up in a year. He thinks it will close on its own. If she gets sick a lot this winter or respitory issues then she will be seen sooner.  If it does not heal by 4-5 years old then they will go in and close it.  I guess that is good and bad news.  They want to wait till she is bigger and the recover is better then them now.  

Last we are doing her oxygen test tonight. The cardiologist wants her off oxygen to help heal her heart so I think she will be off this round.  

Thank you all for all the prayer for our little fighter.